Exposome researchers are invited to a webinar on the implications of the latest decision of the Court of Justice of the European Union on pseudonymised data on 10 October 2025, 14:00-15:00 CEST.
The webinar, co-hosted by our network and the human exposome assessment platform (HEAP), will be presented by Evert-Ben van Veen – Formerly Chair of the EHEN Ethics and Law Working Group, Lawyer at MedLawconsult and affiliated researcher at Karolinska Institute.
On 4 September 2025, the Court of Justice of the European Union decided that pseudonymised data is not by definition also personal data. Whether data is personal data or not in the sense of the GDPR must be decided on a case-by-case basis. The Court underlined once again that the bar is set high before data can be considered anonymous. The Court also underlined that the original collector of personal data must be fully transparent about what may happen with the data, including sending pseudonymised data to a third party, especially if the collection is based on informed consent.
The decision of the Court is very important for the exposome research community and hospitals, which make data available for secondary use. In this webinar, we will explore the consequences of this legal decision in depth. We will also touch upon how the coming European Health Data Space considers pseudonymisation of data, which will need to be analysed in a secure processing environment.
This webinar, which is being co-hosted by IHEN, is the last in a series of three from the Human Exposome Assessment Platform (HEAP) project team on legal and ethical aspects of exposome research. All HEAP webinars are recorded and will be made available at the end of October 2025.
